cavernous hemangioma

cavernous hemangioma
From shadownoz2, August 7, 2007
Does ANYONE have any information on cavernous hemangiomas? I have one behind my left eye, not involving the optic nerve. It was found by accident on a CT for sinus problems. I'm still trying to find an Opthamologist that can help me and confirm the diagnosis and tell me what to do about it (even if it's nothing). This is frightening and I am getting frustrated as well. Please, won't SOMEONE answer me????
Re: cavernous hemangioma
From mek, August 8, 2007
Sharon, Your condition is listed on this eye cancer network site. I see you live somewhere in Texas. Under the physician finder area there are some doctors in Houston that can help you. These doctors are experts at diagnosing eye and orbital tumors. There are not ophthalmic oncologists in my area. We travel over 4 hrs. for my appointments. Marie
Re: cavernous hemangioma
From mek, August 8, 2007
Also Sharon there is a doctor in San Antonio. Marie
Re: Re: cavernous hemangioma
From shadownoz2, August 17, 2007
Hi Marie, Thank you for writing. I have found a Dr. in Austin (I live 40 miles from there) and he and all his associates sound wonderful. This has been a stressful event and I'm ready to move forward! Hope you are well. Sorry you have to travel so far for your appointments. Take care. Regards, Sharon
Re: Re: cavernous hemangioma
From mek, August 17, 2007
Sharon, I'm glad you found a doctor. Let us know how you make out. I had a large rare orbital tumor. It was removed last year, then had an IMRT type of radiation. I'm ok but have cornea trouble and a CLOSED eye. It took me forever to get used to not having vision in one eye-- I only started to drive again 2 months ago and I still have to really watch it! If my cornea can be fixed, then I will see again but it will be awhile before anything can be done. Marie
Re: Re: Re: cavernous hemangioma
From shadownoz2, August 20, 2007
Hi Marie, The Dr. in Austin was wonderful. (Dr. Russell Neuhaus of Texas Oculoplastics). I am very lucky, we are going to monitor the lesion (benign) and I will go back for a one year follow-up. I have a niece who lost her left eye vision to an optic nerve tumor so this hit "home" for me and all my family. Support is key with any illness of any degree--I am here if anyone ever needs to talk!!! Sharon