Hello-New on board

Hello-New on board
From mek, May 3, 2007
I had a large, rare orbital tumor removed last June. Fortunate that the doctor was able to remove the whole mass. It was a rare, poorly differentiated carcinoma and not like other know tumors I have read about on the eye cancer network. 8/06 I had external beam radiation. Cornea began to scar as a result of radiation and, I think, prior cornea trouble. My EYE HAS BEEN CLOSED since end of AUGUST. Very THANKFUL that pet, mri and ultrasound are all OK and I have hope to have open eye and vision again someday in the later future because there are surgeries that can take care of this. Most of you have coped with half vision better than I. Many of you drive the next week and John on this board was on a CHIMNEY! I have not driven the car since the end of Aug. Up until a few weeks ago my good eye was light sensitive and closing in sympathy with my closed eye --no medical reason for this--just didn't get used to this very well.This problem has now gone away and I feel GREAT & am back to work a little bit (not full speed because work requires driving!!), however, I am afraid to drive like this. Any tips on how to feel safe and confident in the driver's seat? Also, has anyone had cornea damage to deal with after treatment? Marie
Re: Hello-New on board
From hayley, May 3, 2007
Hi Marie, You might want to post your message on the choroidal melanoma thread as that gets a lot of action. I know you'll find great support. Best, Hayley
Re: Hello-New on board
From annemarie, May 3, 2007
Hi Marie, Welcome to the board. I had plaque radiation surgery last fall and basically have no vision in my left eye. My tumor is on/in the optic nerve. Depth perception is the main issue I deal with. The first time I went to put a glass down on the coffee table I almost broke it because the table was closer than what I saw. I basically just took my time. Try driving when you know there's going to be less traffic. Since it's my left eye, I try to drive in the left lane when possible. Then I don't have to worry about anyone coming into my lane from the left. Take someone with you, if possible. I know I have to look over my left shoulder constantly. The type of car you drive can also make a difference. I have to do a lot of driving for my job as well. I have been able to cut back on that a bit since the surgery. The car I drive now, has poor visibility. I didn't really notice this before the surgery. Since the surgery I've driven a friends car on occasion and the visibility is much better. This will definitely be taken into consideration the next time I buy a car. I also find that I bump into things a lot. The other day I was leaving my office and misjudged the corner of the desk. OUCH! I have a nice bruise on my leg now. Sometimes I get frustrated, but I think of the alternative. I hope this helps. Keep posting. There are many people with many different experiences on this board. All the best, Anne Marie
Hi Anne Marie
From mek, May 4, 2007
Thamks for your post! It is my right eye so when I drive I will start with only right turns!! Since the light sensitivity went away, I feel back to normal, but if I don't watch it I'll bump into people and things!! Marie