Retinoblastoma Forum

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Re: I Survived it too
From Millus , April 17, 2004
Hi It is my son that had retinoblastoma - I am writing from his computer. Clayton is 16 and was diagnosed when he was two. He too had many radiation treatments and then the eye was removed in 1990. He...
I Survived it too
From erlynn , April 2, 2004
Hi! I too am a retinoblastoma survivor. I was diagnosed when I was 5--just immigrated from the Philippines when I was 3 years old. So, my parents did not want all that. Stayed at a foster home until m...
I'm sorry, This message it's in spanish Rethinoblastoma
From meollar , March 8, 2004
Somos unos padres de España que tenemos un hijo con 2 años tratándose de retinoblastoma (radioterapia, crioterapia y quimioterapia). Nos hemos enterado que a otro niño que también se le había diagnost...
12 months old child with monocular retinoblastoma, therapy?
From Anne , June 18, 2003
Dear Dr. Akalb, Those of us who post on this bulletin board are eye cancer patients, friends or relatives who share experiences and offer each other support. Since we are laypersons, and not physician...
12 months old child with monocular retinoblastoma, therapy?
From fatma akalp , June 4, 2003
Dear Sir, It is the first time that I found this website. I myself have been working currently in Zürich University Eye Department in Switzerland and my residency has just finished after 5 years of st...
12 months old child with monocular retinoblastoma, therapy?
From fatma akalp , June 4, 2003
Dear Sir, It is the first time that I found this website. I myself have been working currently in Zürich University Eye Department in Switzerland and my residency has just finished after 5 years. I wo...
Re: Retinoblastoma Survivor
From Riley , February 27, 2003
SANDY, THANKS FOR POSTING AND MAKING YOUR SELF AVAILABLE TO US IF WE NEED TO TALK TO A EXPERIENCED RETINOBLASTOMA SURVIVOR. MY DAUGHTER RILEY HAS BILATERAL RETINOBLASTOMA AND I HAVE TO SAY SHE IS DOIN...
Re: my 20 month old niece
From Riley , February 27, 2003
DEAR CAROLE, I AM A MOTHER OF A 2 1/2 YEAR OLD DAUGHTER NAMED RILEY WHO HAS BILATERAL RETINOBLASTOMA. WE FOUND 4 TUMORS IN EACH EYE AT 5 MONTHS OLD. RILEY WENT THRU 6 MONTHS OF CHEMO, THEN A 1 1/2 OF ...
Retinoblastoma Survivor
From SandyRn0 , February 21, 2003
Hello all! I was a bit surprised when I didn't find a posting from anyone who has experienced retinoblastoma "first hand", so I'll be the first. :) I was diagnosed with unilateral disease which result...
Re: my 20 month old niece
From cvh , February 13, 2003
Carole - welcome to this site. Could you please tell us where you (your neice) are by filling in your profile (click on Options below your post). There is a lot of info on this site on Retinoblastoma ...

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