Retinoblastoma Forum

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retinoblastoma diagnosis

From Heather40 , April 1, 2005

hello. I had never heard of retinoblastoma until a few moments ago. I was researching on the net any possible/suspected link between IVF and cancer, which led me to articles (albeit disputed/discussed...

Re: Retinoblastoma and enucleation

From ejacques , March 25, 2005

Hi Scott, As far as cancer being found in the choroid, I am assuming that this was found in the enucleated eye after removal? I am unfamiliar with follow-up treatment of chemo on children, are you wor...

Retinoblastoma and enucleation

From sgregg003 , March 16, 2005

Hello, my name is Scott and I have a 19mos old son who was diagnosed with retinoblastoma in june of 2004, and just had his eye removed last week, unfortunately my sons doctor told us today that their ...

My husband has Retinoblastoma

From TammiT , March 8, 2005

My husband, Jason, just turned 29 years old. When he was 7 years old he was diagnosed with retinoblastoma. The cancer is located in his right eye. He was a patient at St. Jude's Research Hospital and ...

eye care meet and greet

From ncmarano , January 19, 2005

Dear members of the Bulletin Board, we patients have been so successful over the years corresponding and supporting each other, as well as family members and friends, through the Bulletin Board that t...

Re: college scholarships for cancer survivors

From cvh , September 3, 2004

Nancy - you should check out the "Links" section of this site (look in yellow bar down the left of the Home page), for starters - some of those links may also have other links to assistance organizati...

college scholarships for cancer survivors

From bgrassgirl , September 3, 2004

My daughter is a 17-year survivor of retinoblastoma, after cryotherapy, phototherapy and radiation treatments (1-7 months of age). She is a senior in high school now and has near-normal vision in both...

Re: Help, i am unsure

From cvh , June 17, 2004

Angelina - if you are still around - welcome to this site. I gather from your email address, that you are in the UK? If so, is there any way you can get your son to the Royal University Hospital in Li...

Re: Help, i am unsure

From ryan , June 15, 2004

Angelina, Take a snapshot of your son using a regular 35 mm camera. If it is retinoblastoma, normally you will get a white reflux in the center of the eye. It is just like red-eye, except it will be w...

Help, i am unsure

From Angelina , May 13, 2004

Hi there, My son is seven When he was born i noticed an abnormality with his pupil. It is the shape of an upside down teardrop. He went to the Orthoptic (excuse spelling) clinic where i live, he was a...

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