Understanding Your Data Privacy

Whether scrolling through the latest Twitter trends or clearing out your inbox, if you’ve browsed the internet within this past week, the chances are that you have received an influx of emails regarding privacy policy updates from some of your most-frequented websites. You may be wondering: what do all of these updates mean?

At The Eye Cancer Foundation, our continued goals are motivated and achieved entirely through the support of our members, donors, and visitors of our website. Every cent made towards saving sight, every well-wish received through comments or letters, has championed great developments in the field of eye cancer research and care. With projects like The Visionary and The Doctor-Reported Outcomes Initiative, much of our work involves making scientific information clear and readily available to the public. We value transparency to the highest degree and will always keep readers up-to-date with all aspects of our work. This is why we are answering all questions regarding the new data privacy regulations established by The EU General Data Protection Regulation and how your personal information is recorded into our website.

As of May 25, 2018 and after four years of preparation and debate across the EU, The EU General Data Protection Regulation (GDPR) has taken effect. According to the GDPR resource website:

“The EU General Data Protection Regulation replaces the Data Protection Direction 95/46/EC and was designed to harmonize data privacy laws across Europe, to protect and empower all EU citizens data privacy and to reshape the way organizations across the region approach data privacy … The GDPR not only applies to organizations located within the EU but it will also apply to organizations located outside of the EU if they offer goods or services to, or monitor the behavior of, EU data subjects.

The GDPR applies to ‘personal data’ meaning any information relating to an identifiable person who can be directly or indirectly identified in particular by reference to an identifier. This definition provides for a wide range of personal identifiers to constitute personal data, including name, identification number, location data or online identifier, reflecting changes in technology and the way organizations collect information about people.”

Your data privacy has been a paramount priority at The Eye Cancer Foundation since 1998. In accordance with the latest guidelines set out by GDPR, please refer to the outline below on the types of information collected at this website, and what we do with this information:

Donation Privacy:

The ECF is primarily funded through individual donations by supporters through our donate page. There, we collect your name, address, email address, and credit card information in order for this donation to be made. Your credit card information is securely made through Stripe Fundraising; it will not be stored and used for any purposes outside of your ECF donation. Your name and address is used in order to send to you a contribution receipt of your donation, while giving you the option to permit whether or not the Foundation may add your name to our Annual Donor Directory. The Directory is used exclusively by The ECF Board as a means of contact with past contributors; this information is not sold or rented to any third party.  

Physician Directory:

The ECF is proud to have established a directory of eye cancer specialists around the world, so that patients can find the nearest doctors available to them. This information is made available by eye cancer specialists personally adding their profiles to the Physician Directory through this link. These doctors create profiles through ECF-exclusive email addresses and add their name, education, social media, and contact information. This information is used only by The ECF Board, who publish these doctors to the Directory online so that patients may find them. This information is not sold or rented to any third party.

Subscribing to The Eye Cancer Foundation Newsletters:

We seasonally publish our digital newsletter, The Visionary, which is made publicly available by visiting our websites. Supporters of ECF can receive the latest editions of The Visionary by subscribing to our free Newsletters we send via Bloomerang. Your email address is secured and used for no other purpose other than sending informational emails from ECF board members. At any time, you may opt out of these subscriptions.

As with other websites, internet browsing may lead to the collection of automatic information, such as: internet IP, browser software, a recent record of browsing activity, and internet cookies. 

Regarding the privacy of children, the ECF website does not knowingly collect information from anyone under the age of 13 who is unaccompanied by a parent or guardian. The website’s content is not directed to children under the age of 13 unaccompanied by a parent or guardian. 

To the greatest extent of the law, we reiterate that we do not disclose any personal information regarding ECF supporters and donors to any third party with your authorization.

Any concerns regarding your information can be answered by contacting us directly at 212-832-8170. For more recourses on GDPR, please click here.

We thank you for your continued trust, loyalty, and faith in The Eye Cancer Foundation and our projects. For the past 20 years, we have dedicated our causes towards “saving sight, and saving life”, and could not be where we are without your support.

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