Eye Cancer Links & Resources

Blogs/Personal Websites

Big Trouble in Little Eye Ball
Eye on Melanoma
Love X Infinity
Lost Eye
Rob’s Story

Cancer and Nutrition

USDA Internet Nutrition Resource List

Clinical Trials

Clinical Trials.gov

E-Groups

Adenoid Cystic Carcinoma at ACOR.org
Ocular Melanoma E-Group (Mostly Metastatic Melanoma) - "OCU- MEL"
Yahoo-Based Choroidal Melanoma Bulletin Board - "The other board"

Educational Eye Cancer Resources

ACS
Cancer.net
Duke Health
Livestrong
MD Anderson
Medline Plus
National Cancer Institute
Washington University Physicians

Evidence Based Medicine

Guide to evidence-based medicine

Eye, Radiation and Institutional

American Academy of Ophthalmology
Canadian Association of Optometrists
American Association of Physicists in Medicine
American Society for Therapeutic Radiology and Oncology
ARVO
Beth Israel Comprehensive Cancer Center
Conjoint Libraries - Royal Victorian Eye and Ear Hospital
Duke Comprehensive Cancer Center
ISER
Kellogg Eye Center - University of Michigan
Luebeck University Medical School - Ophthalmology
New York University School of Medicine
Optical Society of America
Sankara Nethralaya
The American Academy of Optometry
The National Eye Institute
The National Institute of Health
The New York Eye and Ear Infirmary

Facebook Groups

Financial Resources

A Cure in Sight
ACS Hope Lodge (free housing)

Air Charity Network: 877-621-7177
American Association for Cancer Research
American Cancer Society: 888-227-2345
Angel Flight Network
Angel Flight Northeast
Angel Flight Southeast: (800) 352-4256 
Angel Flight West: 888-4-AN-ANGEL 
Bristol Meyers Squibb, Financial program for Yervoy
Cancer Care: 1-800-813-HOPE (4673) 
Cancer and Careers
Corporate Angel Network: Bonnie LeVar, (914) 328-1313
Health Resources and Services Administration
Medgift
National Financial Resource Directory
OM patients in the NY area can also try for the CancerCare Financial Assistance Program set up with funds from the Lavelle Foundation for the Blind. Call 1-800-813-4673.
Patient Advocate Foundation
Patient Airlift Services (PALS): Farmingdale NY 888-818-1231
The Center for Patient Partnerships, University of Wisconsin: (608) 890-0321 
The Tumori Foundation
United WayCall 211

Foundations

Fight for Sight
The Foundation Fighting Blindness

Genetic Testing and Counseling

Castle Biosciences
International Clinical Genetic Societies

National Cancer Institute: Cancer Genetics Services Directory
von Hippel Lindau Information (vhl.org)

Grief and Loss Resources

Aging With Dignity
Aging with Dignity publishes Five Wishes, an easy-to-use legal document that helps adults of all ages plan for the care they want in case they become seriously ill.

Cancer Care
A fact sheet that’s appropriate for children ages 2 to 12

The death of a parent only adds to the difficulty of the teen years. It presents new challenges for both the teenager and his or her family.

Grieving the loss of a spouse or partner is about cherishing your memories of your loved one while remaining open to new experiences that may enrich your life.

Camp Kesem
Camp Kesem is a college student run summer camp for kids with a parent who has (or has had) cancer. Our one-week sleep away camps are a chance for kids 6-16 to have a fun-filled week and just be kids. Everything we do at Camp Kesem focuses on our goal of giving campers the most fun week possible, while providing the extra support and attention they need.

Caring Connections
Caring Connections is a program of the National Hospice and Palliative Care Organization.  It is a national consumer engagement to improve care at the end of life, supported by a grant from The Robert Wood Johnson Foundation.  Caring Connections provides a variety of free resources on end-of life issues.

The Dougy Center for Grieving Children & Families
The Dougy Center was the first center in the United States to provide peer support groups for grieving children. The organization has served more than 14,000 children, teens and families since 1982. Through its National Center for Grieving Children and Families, the organization provides support and training locally, nationally and internationally to individuals and organizations seeking to assist children in grief. The Dougy Center is supported solely through private support from individuals, foundations and companies, and receives no state or federal funding. The Dougy Center does not charge a fee for its services.

Growthhouse.org
Growth House, Inc., provides an award-winning Internet portal as a international gateway to resources for life-threatening illness and end of life care. The organization’s primary mission is to improve the quality of compassionate care for people who are dying through public education and global professional collaboration. Growthhouse.org’s search engine gives you access to the Internet’s most comprehensive collection of reviewed resources for end-of-life care.

Hospice Foundation of America
The Hospice Foundation of America exists to help those who cope personally or professionally with terminal illness, death, and the process of grief and bereavement.

National Hospice and Palliative Care Organization
The National Hospice and Palliative Care Organization (NHPCO) is the largest nonprofit membership organization representing hospice and palliative care programs and professionals in the United States. The organization is committed to improving end of life care and expanding access to hospice care with the goal of profoundly enhancing quality of life for people dying in America and their loved ones.

PBS Parents
Sesame Workshop presents personal stories about coping with the death of a parent. Katie Couric joins Elmo and his furry friends to model communication between adults and children. They’ll also offer thoughtful suggestions and strategies that help the whole family.

Media: Print and Internet

A Singular View: The Art of Seeing with One Eye
Acta Ophthalmologica Scandinavica
American Journal of Ophthalmology
Archives of Ophthalmology
Archivos de la Sociedad Espanola de Oftalmologia
ASCRS Publications
Asian Journal of Ophthalmology
British Journal of Ophthalmology
Canadian Journal of Ophthalmology
Clinical and Experimental Ophthalmology
Digital Journal of Ophthalmology
Experimental Eye Research
Eye
EyeCareInfo.com
EyeWorld
Graefe's Archive of Clin. and Exp. Ophthalmology
Highlights of Ophthalmology - Online
Internet Journal of Ophthalmology
Investigative Ophthalmology and Visual Science
Japanese Journal of Ophthalmology
Ophthalmic Surgery, Lasers and Imaging
Ophthalmology
Survey of Ophthalmology

Medical Oncology

American Cancer Society
Cancer Supportive Care
Cancerlinks.org
CancerQuest.org
Coalition of Cancer Cooperative Groups
   ECN Metastatic Melanoma Links
   Centerwatch
   Gerson
   Search PubMed about Metastatic Choroidal Melanoma
FDA Oncology Tools
MD Anderson
National Cancer Institute Clinical Trial List
Rare Cancer Alliance
Sloan Kettering

Medical Physics

About Palladium-103 Ophthalmic Plaque Brachytherapy
Eye Physics, LLC - Plaque Source
Search the Internet for Articles related to Medical Physics and the Eye
The 2003 American Brachytherapy Society recommendations for brachytherapy of uveal melanomas.

Medication costs - Assistance

Lucentis: (866) 724-9394
AVASTIN Patient Assistance Program

Ophthalmic Pathology

Ocular Pathology Review
Online Ocular Pathology Atlas

Ophthalmic Ultrasound

NYEEI - UBM Clinical Database Initiative
Pavlin's High Frequency Ultrasound
The COMS Ultrasound Web Page

Organizations/Foundations

CURE OM
Eye Tumor Research Foundation
Wills Eye Institute

The Lions Club
The Lions Club, Assistance Requests
Ocular Melanoma Foundation

Other Eye Cancer Web Sites

American Society of Ocularists
Collaborative Ocular Melanoma Study (COMS)
EyeCancerMD at Bascom Palmer Eye Institute
EyeTumor at Washington University
Genetic Testing Services for Retinoblastoma
LostEye.com
Ocular Melanoma Metastatic to the Liver
Perfecteyepatch.com
Retinoblastoma Database Project
Retinoblastoma Related: Sena's Eyes
Retinoblastoma.ca
Retinoblastoma.com
The Liverpool Ocular Oncology Center
The Ophthalmic Oncology Group of the (EORTC)
The Tumori Foundation
Uveiti.it in Italy

Patient Forums & Boards

American Cancer Society
Cancer Compass
Eye Cancer Forum UK
Lance Armstrong Foundation
Melanoma International Foundation
Melanoma Research Foundation CURE OM
OCU-MEL UK
Ocular Melanoma Foundation
Physician Finder via ECN
Yahoo Groups: Chorodial Melanoma Group

Social Service

American Association for Cancer Research
CURE OM Phone Buddy Program: 800-673-1290
Daisy's Eye Cancer fund
Gilda's Club Chicago
Gilda's Club New York
Imerman’s Angels
Make a Wish Foundation
National Children's Cancer Society
Retinoblastoma of Arizona: Patient and Family Resources
The Retinoblastoma Society

Societies - Ultrasound

American Institute of Ultrasound in Medicine
American Registry of Diagnostic Medical Sonographers
Australasian Society for Ultrasound in Medicine
British Medical Ultrasound Society
Danish Society of Diagnostic Ultrasound
European Federation of Societies for Ultrasound in Medicine
Finnish Society for Ultrasound in Medicine and Biology
German Society of Ultrasound in Medicine and Biology
Italian Society of Ultrasonography
Latin-American Federation of Societies for Ultrasound
Mediterranean and African Society for Ultrasound
Norwegian Society for Diagnostic Ultrasound in Medicine
Ophthalmic Standardized Echography
Swedish Society for Medical Ultrasound
Swiss Societies for Ultrasound in Medicine
World Federation of Ultrasound in Medicine and Biology

The Industry - Ultrasound

Accutome
ARC SCAN
DGH Technology, Inc.
Innovative-Imaging, Inc
Optikon
Paradigm Medical Industries, Inc.
Quantel Medical BVI
Sonomed - Escalon
Bebig (ru-106), Germany
Theragenics Corporation (palladium-103 Seeds), USA
Varian Medical - USA

Travel Assistance

Air Transportation
Financial assistance and referrals
Housing in New York City
Lodging

Who's Who - Medical Oncology

Anna Pavlick, MD - New York City, USA - Adult
AYN Schouten-van Meeteren, MD - The Netherlands- Pediatric
Juergen C. Becker, MD, PhD - Wurzburg, Germany- Adult
Linda Granowetter, MD - New York City, USA - Pediatric Oncology
Takami Sato , MD - Philadelphia, USA - Adult

Who's Who - Metastatic Uveal Melanoma

Takami Sato, MD, PhD
Director, Metastatic Uveal Melanoma Program Thomas Jefferson University Hospital and Kimmel Cancer Center
Email: medicaloncology@jefferson.edu
Web Site
1-800-533-3669

Renee Zalinsky, RN @ Jefferson Hospital
Senior Cancer Care Coordinator
Phone: 1-800-JEFF-NOW
Email: Renee.M.Zalinsky@jeffersonhospital.org

Dr. Anna Pavlick
NYU
160 E. 34TH STREET
NEW YORK, NY 10016
Phone: 212-731-5431 or 212-652-1922
Fax: 212-731-5502

Dr. Scott Woodman
The University of Texas MD Anderson Cancer Center
7455 Fannin Street
Houston, TX 77054
Phone: 713-563-9286
Fax: 713-563-3424

Dr. James Pingpank
University of Pittsburgh
Hillman Cancer Center
5115 Centre Avenue
Pittsburgh, PA 15232
Phone: (412) 692-2852

Dr. Nutting
Interventional Radiology & Vascular Radiology
Radiology Imaging/Invision
11960 Lioness Way Suite 100
Parker CO 80134
(720) 493-3700

Dr. Carvajal
Memorial Sloan Kettering, New York
646-497-9067

Who's Who - Ophthalmic Ultrasound

E-mail Cathy DiBernardo in Maryland, USA
E-mail Culver Boldt in Iowa, USA
E-mail Cynthia Kendall in Northern California, USA
E-mail Diane Chialant in Ontario, Canada
E-mail Mark Evans in Ohio, USA
E-mail Rhonda Waldron in Georgia, USA
E-mail Ronald L. Green, MD in Los Angeles, USA
E-Mail Ronald Silverman, MD in New York City, USA
E-Mail Sandra Frazier Byrne in North Carolina, USA
E-mail Susan Lindley in Montreal, Canada
E-mail Tom Prager, Ph.D. in Texas, USA (immersion)
Karl Ossoinig's "Echography.com"