Retinoblastoma Forum

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pregnancy
From aj208, November 22, 2012
Hi, i was diagnosed at the age of 17 with a regressed retinoblastoma (unilateral) at a routine eye test. two years later, the tumour appeared to begin growing again and i was treated with plaque radia...
second melignancies
From mrpuppy1983, September 21, 2011
Does anyone know of any relevant research regarding the RB1 mutation that causes bilateral retinoblastoma and a possible link to colorectal cancer later in life?
will it come back , has it happened to anyone else
From mcdonald1x, September 7, 2011
hi there my son at the time was 2 years old and we got told he had retinoblasmto , he has had his left eye remove in october 2010 we have a lot of check ups which so far have been fine he now 3 years ...
Can anyone help?
From Request, June 24, 2009
I am a journalist and have heard that sometimes eye cancer is picked up when someone notices their eyes looking white in photographs. Has anyone experienced this in themselves or in a child? It would ...
Can retinoblastoma be related to breast cancer?
From Baboca, December 8, 2008
Hi everyone, I recently found out that I had a retinoblastoma at the age of 3 (and not a bening tumor as I was told). At the age of 31 I had breast cancer (I am now 34) and I am just slowly finding ou...
Newbie from Utah
From kbarkema, February 23, 2008
Hi! My family and I are in Utah and have had our world turned upside down when our youngest daughter, Lola, was diagnosed with unilateral retinoblastoma on November 30th of last year. She is currently...
Save the Date!
From hayley, April 23, 2007
Save the Date! The EyeCare Foundation is hosting its 2nd Annual Get Together! Come celebrate life and raise awareness about eye cancer! Date: Saturday, June 2nd from 1-3pm Who: All eye cancer, tumor a...
ray's story
From ray lacy, December 14, 2006
I lost my left eye at 8 months old to retinoblastoma. I was born in 06/1975 at that time I was the yougest baby ever found with retinoblastoma! I'am 31 years old know.
OWENS STORY
From kyoung , July 21, 2005
Our son was diagnosed w/Retinoblastoma at 15 mos. He has endured six rounds of chemo with no side effects other than hair loss, as well as laser treatments. Our strength has came from The Lord. We wer...
Re: retinoblastoma diagnosis
From ejacques , April 2, 2005
I would check with a pediatric opthamologist - specifically asking the to rule out retinoblastoma. Elizabeth

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